Due to the ongoing Coronavirus pandemic, we will run/walk VIRTUALLY in our Hometowns to raise funds for ground-breaking research alongside Liam's Lighthouse Foundation, to increase awareness of a disease that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis.
We are walking for our sweet boy, Hudson, who was diagnosed with Rosai Dorfman disease, a subtype of Histiocytosis, at only 8 months old. Hudson’s disease is attacking his lymph nodes & it has already required him to need two surgeries in his groin to remove enlarged, tumorous nodes. Hudson will be two in October and is such a brave boy. We fight & advocate for him.
Every step taken and every dollar raised brings us closer to the ultimate finish line...A CURE!
and joining a team today!
Liam’s Lighthouse Foundation
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA
Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.