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5K to Fight Histio 2020 - Team Jogging for John

Join us virtually to help raise money and find a cure!!! Learn More

This is for John, my husband and best friend.  

Labor Day was upon us and summer was ending.  John finished the weekend with what seemed to be a case of strep and just run down from the weekend festivities.  On Wednesday he was complaining of shortness of breath, so we went to the E.R., figuring he needed fluids, possibly had pneumonia.  He never made it back home.

We endured 3 different hospitals and had every test imaginable completed.  John was running a high fever, so they suspected a virus.  He continually tested negative.  At this point, a week in, they were just keeping him alive.  Finally, a doctor suspected HLH, and sent us to a larger hospital to have support from more specialists.  Unfortunately, this hospital didn't believe the diagnosis at first, and by the time they did, it was entirely too late.  

We learned that most of the doctors had only read this in textbooks, and didn't really know best practices for identifying and treating it.  Funding will also go toward continuing to educate the medical field about this disease, so that cases can be identified faster, resulting in effective treatments, and someday, a CURE!

Please consider making a donation 
and joining a team today!

Liam’s Lighthouse Foundation
EIN 27-1309152
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA


Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.

Linda Benedict
Anonymous $20.00
Belinda $20.00
Rich and Lisa Gemmell
We miss him so much.
Kerry Lynn
I Love Your Strength!! I will help you fight! ❤️
Kathy Dagley
Susan S
You are an inspiration. Good luck on your fund raising!
Nadine and Terry
Hope you reach you goal to double your goal!! We love you - Nadine and Terry!
Uncle Michael & Aunt Cindy
Sending lots of love
Jim Hayes
Sending love your way Christina! Thank you for your diligent efforts in the support of finding a cure ❤️
Marie Riley
Love and best wishes from Marie and Tom
Heather and Bill Bezek
In memory of our dear friend, John Hayes. We love you, Christina Hayes! Thank you making the rest of us aware of this awful disease and we pray that they find a cure soon!
Jill Nelson
Sending hugs!!!
Confroy Family $25.00
Rita Tomkiewicz $30.00
Mr.& Mrs. John Hayes
Good Bless!.................Love, Mom & Dad
Anna Malloy
Mom and Dad $500.00
Dave & Margaret Wasco & Family
In loving memory of a great man, John P. Hayes
Ken $100.00
Eileen & Matt
Sending love and hugs ❤️Eileen, Matt, James, Kate and Jared.
Evans Family
We love you Christina Hayes! What a great way to celebrate John and raise awareness for this important cause.

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