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5K to Fight Histio - Team Jayden - Jen & Jayden

Join us in New York City! Together, we will run/walk to raise awareness and funds for ground-breaking research, to increase awareness of a disease that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis! Learn More
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Hi Friends and Family, I am partnering with Liam's Lighthouse Foundation and raising money for 5K to Fight Histio 2020. I sincerely appreciate your support for this fundraiser and my goal.

As many of you know, my 15 year old son, Jayden, has been battling Langerhans Cell Histiocytosis, (LCH), since June of 2013. LCH has done damage to his pituitary gland, his hypothalamus, his GI system, and his skin. It has left him with Endocrine issues; Central Diabetes Insipidus, Central Sleep Apnea, thyroid issues, memory issues, vision issues, and so much more. He has been through over two years of chemo therapy so far but his battle isn’t over. He has an MRI coming up on the 15th to see what’s happening now as he is having some new concerns.

Patricia—Octavius Bacon Mother $10.00
Jodi & family
We love yall!!! Yall Rock this 5K
$25.00
Anonymous $10.00

March 2, 2020 3:41 PM

Jayden’s MRI showed new lesions on the nerves in his spine. His doctors are not sure what they are at this point. We will repeat the MRI in three months unless Jayden has any new issues come up.

There is still so much unknown about Histio. This is why funding research is so desperately needed! There has been several times through Jayden’s journey where his doctors were left scratching their heads because they hadn’t seen what he’s experiencing with Histio before. Knowledge is power and can save lives!!

Please donate if you can and help us! Thank you!! Much love to you all!!

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