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5K to Fight Histio 2020 - Lilyann Shipkowski

Join me virtually, we will run/walk to raise awareness and funds for ground-breaking research, to increase awareness of a disease that I have and that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis! Learn More
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Due to the ongoing Coronavirus pandemic, we will run/walk VIRTUALLY in our Hometowns to raise funds for ground-breaking research alongside Liam's Lighthouse Foundation, to increase awareness of a disease that all too often goes misdiagnosed, and provide support to each other as we fight Histiocytosis. As many know I was diagnosed 10 years ago with pulmonary langerhans cell histiocytosis. It's made daily tasks very difficult to complete and I've have been off and on chemo for the last 8 years. It spread to my skin in 2017. I cant go a day with out being reminded of my symptoms and pain. Histiocytosis is a rare cancer so it doesnt get funding for testing. We must raise the money ourselves. If there wasnt the research there is out they wouldnt know what treatment protocols to put me on. Once I'm done breastfeeding link my team wants me back on chemo for the 3rd time. Join me virtually and help raise funds and awareness for histiocytosis.  Every little bit helps. 

Please consider making a donation 
and joining my team today!

Liam’s Lighthouse Foundation
EIN 27-1309152
5818 Charlois Court | Colorado Springs, CO 80922-2226 USA


Liam's Lighthouse Foundation (LLF), a non-profit, tax-exempt organization, was established to create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) including Histiocytic Disorders, and to distribute unbiased, factual information to physicians, hospitals, and the community regarding this disease. Our focus is also to bring families affected by HLH/Histiocytosis together and offer support through a variety of resources. We aim at raising much needed funds for continued education of physicians and research to develop safer and more effective treatment methods and ultimately a cure. LLF is also dedicated to bring awareness to the community about the importance of becoming a blood and bone marrow donor.

Joanne & John Minich
Lily life will always bend you but trust me you are too strong to break! With our love mom and John
Ur the strongest person I know

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